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My son's CP

Posted: Mon Apr 28, 2008 8:09 pm
by Sartresue
Different degrees of CP topic

My son mark has a very mild CP, in his lower legs. He threw away his articulated plastic braces at five years of age. Now he is a medium sized strapping boy with a strong upper body. He lifts weights. I just wanted to post this to let people with mild CP know that they can become more physically fit. :boogie:

Re: My son's CP

Posted: Mon Apr 28, 2008 10:55 pm
by alin0s
It is indeed to gain some ability with CERTAIN kinds of cerebral palsy. However it is best that you talk about it with your doctor and physical therapist so you don't cause more problems. This is especially true with more severe cerebral palsies like mine was. I couldn't walk long distances nor could I run at all. I have a motor neuron disease that affects both brain and spinal cord now. i am not recommended to do any exercise outside of my specialized physical therapy designed for pain control. There is no hope of regeneration.

Re: My son's CP

Posted: Tue Apr 29, 2008 8:51 pm
by Sartresue
CP and Therapy topic

You are correct, Alin0s. No one should ever start therapy or do anything that could harm themselves without a doctor or therapist being aware. As it is my son cannot roller skate or ice skate because of balance problems. And he has some pain in his ankles after being on his feet for a while. He does tend to push himself. He did not like wearing braces when he was little because other kids would tease him. :evil:

My son has the mildest form of cerebral palsy. I am sorry, I did not know that you had a more severe form. :(

I hope you were not offended. :huggles:

Re: My son's CP

Posted: Tue Apr 29, 2008 8:55 pm
by alin0s
Sartresue wrote:CP and Therapy topic

You are correct, Alin0s. No one should ever start therapy or do anything that could harm themselves without a doctor or therapist being aware. As it is my son cannot roller skate or ice skate because of balance problems. And he has some pain in his ankles after being on his feet for a while. He does tend to push himself. He did not like wearing braces when he was little because other kids would tease him. :evil:

My son has the mildest form of cerebral palsy. I am sorry, I did not know that you had a more severe form. :(

I hope you were not offended. :huggles:


I was in no way offended by any of your posts content. However i did want to leave my mark and give the advice for future visitors to [b]NOT[/b} start ANY therapy or exercise until their doctor or therapist's consultation. I have bad balance issues and when I used to walk you could see a very "Loping" gait. I used to get pain across my entire legs from walking. And I wasn't even pushing myself. I think he should have kept wearing the braces as they were probably designed to augment muscle development by limiting movement on certain vectors, if I were him I would have held onto the braces and used them as my doctor directed. If you didn't know braces are easy to hide under pants and socks (If comfortable enough for skin contact)

:huggles: for Sartresue

Re: My son's CP

Posted: Wed Apr 30, 2008 11:33 am
by Sartresue
CP and Challenged People topic

Thank you for your advice. My son's orthopedic specialist told him he probably would not need his braces past age seven anyway. Now my son just wears special inserts in his shoes. I do not know why he was self-conscious. Other kids used to trip him. Then he started getting stronger and was able to stand up for himself. My son does not have your charm, Alin0s, he was more of a stubborn bull type. :wall: Very NT. He wanted to fit in. I know in retrospect he should have waited until he was seven instead of five to discard his braces.He did used to hide them under long pants but the kids singled him out. I would speak up for him and even complain at his school. I guess my son is more sensitive and afraid of being different. Not everyone is like you and me.

As it is, he knows that when he is a senior he will have the weakness return, due to age-related arthritis and weaker muscles, as this was told to him by a therapist. He says he will worry about that when the time comes. :roll:

So, listen up, readers. Alin0s' ADVICE IS PARAMOUNT HERE. :soapbox:

Re: My son's CP

Posted: Wed Apr 30, 2008 12:04 pm
by alin0s
Sartresue wrote:CP and Challenged People topic

Thank you for your advice. My son's orthopedic specialist told him he probably would not need his braces past age seven anyway. Now my son just wears special inserts in his shoes. I do not know why he was self-conscious. Other kids used to trip him. Then he started getting stronger and was able to stand up for himself. My son does not have your charm, Alin0s, he was more of a stubborn bull type. :wall: Very NT. He wanted to fit in. I know in retrospect he should have waited until he was seven instead of five to discard his braces.He did used to hide them under long pants but the kids singled him out. I would speak up for him and even complain at his school. I guess my son is more sensitive and afraid of being different. Not everyone is like you and me.

As it is, he knows that when he is a senior he will have the weakness return, due to age-related arthritis and weaker muscles, as this was told to him by a therapist. He says he will worry about that when the time comes. :roll:

So, listen up, readers. Alin0s' ADVICE IS PARAMOUNT HERE. :soapbox:


Indeed, only two more stinking years and he would have been following all of the proper guidelines and probably be looking at a better future. Now his future could be in jeopardy due to the possible maldevelopment of the muscles and soft tissue in that region. Those special inserts are technically known as orthotics, and usually help with foot support, but most do not help much at the ankle, only a true AFO helps there. Being that self conscious is a very NT type thing, he must have been attempting to over-normalize. Be glad those AFO's kept the other kids from breaking his ankles, kinda made him more robust :lol: I believe that the stubbornness is definitely part of him trying to over normalize. Trying to fit in is very lame in my opinion. I would have thought it would be easy to hide them under long pants, how old is he now, if he is 25 then I can understand as braces 20 years ago were much more clunky. If it was a serious issue you should have filed a proper ADA protection status complaint, this would result in the school being forced to protect him or face an ADA lawsuit. Your son needs to learn that being different is being unique and being like everyone else is being BORING

When you are a senior your muscles and bones become more fragile, this will definitely result in serious problems at his ankles and may even result in him having dislocations and even loss of the ability to walk. At some point in his senior years it is likely he will need a wheelchair. :roll: I would tell him that he made a remarkably irresponsible decision and that he needs to follow what doctors say. The doctors know best and they are only trying to help. There are other ways he could have fixed the issue with other people bothering him.

Indeed readers :soapbox: LISTEN UP!!!

Re: My son's CP

Posted: Fri Aug 01, 2008 2:37 pm
by Sartresue
CP revisted

My son has asked me to investigate whether having CP has anything to do with his height. He is only 5'6", and is wondering if CP might have stunted his growth. He is 1 and1/2 inch shorter than his non-disabled younger sister. :huh:

Re: My son's CP

Posted: Fri Aug 01, 2008 10:59 pm
by alin0s
Sartresue wrote:CP revisted

My son has asked me to investigate whether having CP has anything to do with his height. He is only 5'6", and is wondering if CP might have stunted his growth. He is 1 and1/2 inch shorter than his non-disabled younger sister. :huh:


Check that he does not have any compressed spinal discs or scoliosis, an abnormal kyphosis can also do this. Simple X-Rays and a doctor visit can usually rule these out. CP in general does not cause growth problems however it can cause delayed growth. In extremely rare cases it can cause stunted growth however this is usually not related to the CP but is related to an accompanying disorder.

Re: My son's CP

Posted: Wed Aug 13, 2008 12:07 pm
by Sartresue
In height of it all topic

Thanks, Alin0s. My son's GP is an idiot. Mark needs to see a specialist to discuss those interesting ideas you pointed out.

Sorry i did not get back to you sooner. :bounce:

Re: My son's CP

Posted: Wed Aug 13, 2008 12:12 pm
by alin0s
To talk about spines and rotation and scoliosis and compression you need to see an Orthopedic specialist. They are easily found. You can use http://doctor.webmd.com/physician_finder/ There are also resources available through your insurance company.

Re: My son's CP

Posted: Mon Nov 24, 2008 10:10 am
by Candice
I have never meet anyone with CP. I try to imagine what it must be like for them but I can't.
My son doesnt have any serious physical illness. He gets severe allergies to certain things and moderate to wheat. He has a bone cyst in his arm and as a result it has broken lots of times but he has since had surgery. He has broken his ankle and his big toe and cut under his chin once that needed stitches or was it glue. When he was at his old school which was private and was expelled from because of me because I was not following the parent rule of keeping with the spirit of the school or something stupid. The psychologist was going to apply for funding for him under High functioning autism and some kind of schizotype disorder but not as serious as schizophrenia, she said.
I have felt alot of grief as a parent as a result of his disability but I think or i know I am lucky that he doesnt have a severe disability because when I took him to respite care there was children there with severe autism and other disabilities. Some was in wheel chairs. Some didnt even speak and I just had to get out of there because I felt heart broken. It made me want to cry. I would say hello to them, help them with a puzzle but i just felt too sad to come across happy. I don't think your suppose to be like that because they are people just the same as anyone else but as a parent I felt heart broken to see other beautiful children that had to face so much more difficulties. It is so cruel and it's not fair.